millie had an appointment at childrens...
- labs went well. she is officially past crying, and now chooses to smile at the techs.
- she weighed in at 15pounds 14ounces!
- her length & head are still growing steadily.
- we didnt meet with her dietician again. the plan is just to continue what we are doing, because it seems to be working for her!
- we brought up something that we are been noticing and were slightly concerned about... she has been having small tremors that almost look like a shiver or really excited shakes. dr. mack let us know that these are common side effects of some of her medications, and also because her magnesium level was low- we heard back lab results while we were in the room. the plan is to back off on her steroid again, which may fix the issue, as well as begin giving her a magnesium supplement twice a day. these tremors are not normally connected to neurological issues, which we were happy to hear, and should be short-term. we hope to see a change soon!
- everyone is still amazed at her progress and are saying that she is doing beautifully!
we saw colton, he is doing really well too, and also the other little lady we met last time who is waiting for a new liver. she is still waiting... hopefully it comes soon! luckily her health seems to be in a better place while she waits than millie's was while she was on the list, but i am sure the wait is so difficult!
- labs went well. she is officially past crying, and now chooses to smile at the techs.
- she weighed in at 15pounds 14ounces!
- her length & head are still growing steadily.
- we didnt meet with her dietician again. the plan is just to continue what we are doing, because it seems to be working for her!
- we brought up something that we are been noticing and were slightly concerned about... she has been having small tremors that almost look like a shiver or really excited shakes. dr. mack let us know that these are common side effects of some of her medications, and also because her magnesium level was low- we heard back lab results while we were in the room. the plan is to back off on her steroid again, which may fix the issue, as well as begin giving her a magnesium supplement twice a day. these tremors are not normally connected to neurological issues, which we were happy to hear, and should be short-term. we hope to see a change soon!
- everyone is still amazed at her progress and are saying that she is doing beautifully!
we saw colton, he is doing really well too, and also the other little lady we met last time who is waiting for a new liver. she is still waiting... hopefully it comes soon! luckily her health seems to be in a better place while she waits than millie's was while she was on the list, but i am sure the wait is so difficult!
















